The American Diabetes Association and National Institutes of Health said this is a concern, so they issued a call to researchers and health care professionals to address patient psychosocial needs in order to improve chronic disease self-management.
Type 1 diabetes is an autoimmune disease where the cells in the pancreas stop producing the hormone, insulin. So, people with Type 1 diabetes must check their blood before every meal with a finger stick or continuous glucose monitor, then calculate the amount of insulin to cover the carbs via an insulin shot or insulin pump that is attached to their body. These individuals never get a break from diabetes; it is a constant battle to stay within acceptable blood sugar range, ensuring it does not go too low or too high, either of which can be fatal if not managed appropriately.
Funded by the ORAU-Directed Research and Development program, ORAU researchers are partnering with a University of Tennessee researcher, Dr. Samereh Abdoli, who has long been interested in the psychosocial impact of living with Type 1 Diabetes. ORAU will support the project by doing quantitative survey data analysis and conducting focus groups and interviews in order to elicit in-depth details of burnout-like phases. The goal of this research collaboration, which began in 2019, is to develop a refined definition of diabetes burnout and create a Diabetes Burnout Model for adults with Type 1 diabetes.
Results of this study are expected to be released within the next 12 months.